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Transition is HARD!!

The definition of transition: movement, passage, or change from one position, state, stage, subject, concept, etc., to another; change: the transition from adolescence to adulthood.

It doesn’t matter if you are a child or an adult, transition is hard for everyone. Especially for those who are extra sensitive to change. Most special needs families are well aware when your child turns 3 years old a huge transition occurs.

For example, your child can receive early intervention (which is state funded) from birth to 3 years old. Soon as your child turns 3 years old the world opens up to many opportunities and tough decisions. Do you want to have your child evaluated by the school district to see if they qualify for special education or go the private therapy route (if you have the money)? As parents, we want what’s best for our children to provide the best services we can to help them succeed and grow. (more…)

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The “No” Syndrome

No!It’s a common syndrome, striking children of all types. Doctors have no way to cure it. Therapists dismiss it as a developmental milestone. It’s a traumatic experience for parents, bringing about fits of internal rage and torment, never allowed to manifest itself in the open but eats at the very soul itself.

It’s the “no.”

Michaela is really into the “no” word. It’s now her instictive response.

“Michaela, pick up the living room.”
No!”

“Michaela, you need to settle down.”
No!”

“Michaela, stop pla….”
No!”
“…ying in the dirt!”

It’s maddening. (more…)

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It’s amazing to see what can happen in a year

It hit me yesterday that Melanie has been in First Steps (early intervention) for over a year now! I was chatting with her therapist this week reflecting back on how much Melanie has been improving since last February.

When Melanie started First Steps she received speech and occupational therapy.  We went through 2 different speech therapist (one moved away and the other was a substitute.) Indiana First Steps several months before Melanie started receiving therapy was going through some changes in their policy.  All Melanie’s therapist are from the same agency (which I like) so their is more accountability among the therapist. (more…)

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Damn curve ball…again

Wow…yesterday afternoon was interesting. I get Michaela off the bus and then my phone rings. It’s the receptionist from our pediatrician office. She told me we needed to schedule a blood draw for Melanie based on the results, because our pediatrician wanted one done.

I asked, “was this the blood draw from Riley that was done in December?” (more…)

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Another diagnosis for our journey with the girls

We finally had Melanie’s developmental pediatrician appointment on Thursday morning. I was a ball of nerves leading up to the appointment. I know going through the process before has helped me a little bit but it doesn’t change the fact about me being nervous to hear those words again.

I got up really early Thursday morning because I couldn’t sleep. When I got ready it was time to wake up the girls which went easier than I expected. Chris took Michaela in his car (since he had to go to work after the appointment) to meet with our associate minster from church who took care of Michaela during the appointment. This way Chris could go to the appointment! What a HUGE relief! I went ahead and took Melanie with me so we can arrive to the appointment early to figure out where we were going and where to register. (more…)

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